tag:blogger.com,1999:blog-7576310937763715660.post669672358041841772..comments2023-09-05T05:16:26.203-04:00Comments on Living in the Light: Coming to Terms, Martha Beck, & the "R" wordLisahttp://www.blogger.com/profile/17347490959410472081noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7576310937763715660.post-58634443205155596362009-02-13T16:31:00.000-05:002009-02-13T16:31:00.000-05:00I read the book when I was pregnant with Lila and ...I read the book when I was pregnant with Lila and loved it. I appreciated the honesty. I am so acutely aware of Lila's delays. I guess I'm weird but instead of making me sad, most of the time it just makes me so acutely aware of her accomplishments! Every time she learns something new or begins to understand a new concept it is a victory. And boy do we celebrate. She makes my heart happy. It saddens me that some people will never give her a chance based on her diagnosis. In my heart I truly believe it is their loss. It also makes me sad that people feel sorry for me because Lila has DS. They will never be able to understand that she is an angel, our gift from God. She has softened my heart and changed my life. Sorry to go on and on....Lindahttp://www.blogger.com/profile/04425142535225258570noreply@blogger.comtag:blogger.com,1999:blog-7576310937763715660.post-52747371554710465312009-02-14T13:06:00.000-05:002009-02-14T13:06:00.000-05:00I work in mental health and the R word is a clinic...I work in mental health and the R word is a clinical term with a very specific meaning to describe only a symptom. However, I am very sensitized to it now and even if used clinically it is jarring. The pejorative use is due to the negative judgement attached to delays and differences in cognition. More is not necessarily better in many situations and this is one of them! I prefer cognitive and developmental delays and learning disabilities since those terms are more accurate and less judgemental. We all have to find our own way to navigate thru the prejudices and negativity but the one thing we do know is--- our children are special, in a good way!starrlifehttp://starrlife.wordpress.com/noreply@blogger.com