tag:blogger.com,1999:blog-7576310937763715660.post3702789688647801815..comments2023-09-05T05:16:26.203-04:00Comments on Living in the Light: New Diagnosis--What to Say to ParentsLisahttp://www.blogger.com/profile/17347490959410472081noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7576310937763715660.post-73957301382140832752009-04-21T14:45:00.000-04:002009-04-21T14:45:00.000-04:00This is Joyce. I LOVE that last statement. I hope...This is Joyce. I LOVE that last statement. I hope that we are not nearing the end of Sarah's life, however we do have 19+ years behind us now, so periodically we do look back. I often think of certain comments that people made and how at the time I thought they were hurtful and rude, yet I can now see how they helped me toughen up a bit and be better prepared for what was to come. So I hesitate in saying that we should only paint a rosy picture, because there will be ups and downs. But I do think we need to get away from allowing parents to think that it is doom and gloom. I think that statement is awesome, it gives hope yet no promises.My name is Sarahhttp://www.blogger.com/profile/12532019900834158013noreply@blogger.comtag:blogger.com,1999:blog-7576310937763715660.post-73603274748434661432009-04-21T15:17:00.000-04:002009-04-21T15:17:00.000-04:00I agree!. After hearing "Congratulations"...I agree!. After hearing "Congratulations", I feel any parent would wish to hear such a beautiful and encouraging statement :)~KC:http://www.blogger.com/profile/03349161257792811578noreply@blogger.comtag:blogger.com,1999:blog-7576310937763715660.post-73749281381429244992009-04-21T23:13:00.000-04:002009-04-21T23:13:00.000-04:00When Aidan was born we had to console people aroun...When Aidan was born we had to console people around us (from our parent's generation especially) and convince them that we were okay. <br><br>Several people said to us, "God sends these little ones to very special families." I never really looked at it that way. If anything, I felt that Aidan would help to make us better people (more compassionate, more tolerant, more appreciative...) Two and a half years later, and I think he has made us better. I wouldn't change this journey for anything.<br><br>I don't know if this answers your question...?<br><br>By the way - I liked what Lila's mom said too.Carol N.http://www.blogger.com/profile/02223840533561032208noreply@blogger.comtag:blogger.com,1999:blog-7576310937763715660.post-25424263375817976432009-04-22T02:41:00.000-04:002009-04-22T02:41:00.000-04:00I love the full potential statement along with the...I love the full potential statement along with the Congrats! It is every human being's right to achieve their fullest potential and accept and admire whatever that might be!The Sanchez Familyhttp://www.blogger.com/profile/02193773268823617205noreply@blogger.comtag:blogger.com,1999:blog-7576310937763715660.post-2464071465459013932009-04-24T21:53:00.000-04:002009-04-24T21:53:00.000-04:00I think "what a beautiful baby" covers i...I think "what a beautiful baby" covers it pretty well. Also loved that saying.I agree that our children bring us so many special things and open up so many things for me.starrlifehttp://starrlife.wordpress.com/noreply@blogger.com