Thursday, May 28, 2009

Miss Congeniality

Today Bridget did nothing to dispel the stereotypes that people with Down syndrome are extra loving and always happy.

We went to Emmy's "First Grade Class Songs" at the elementary school this afternoon, and Bridget reached out to every person who approached us. Literally. Even if they were not coming to talk to us, but happened to be walking or sitting nearby, our little Miss Congeniality reached out with both arms and hopped into their arms. Men, women, children...she didn't discriminate. Anyone who appeared, in any way, willing to hold her got the chance. And it didn't stop there. She hugged and patted, kissed, blew kisses, played peekaboo (in a very coy way, always leaving a little room between her fingers to make sure the person was still watching).

When we were trying to leave, I put Bridget down so she could walk out. I turned around to see her sitting happily in a lady's lap (and I had never seen the woman before...thank goodness she was so willing to indulge my child). When I reached out to Bridget and told her it was time for us to go home, she patted the woman's leg, looked me squarely in the eye and said, "No". She was the life of the party. I am imagining next fall when she walks onto the school grounds again for her first year of preschool. All I can say is, they have no idea what they're in for :).

You'd never know it from the start of this post, but Miss Congeniality has been a bit of a rascal recently. I have been seriously considering getting out my markers and posterboard to make a "TWO-YEAR-OLD FOR SALE" yard sign. She pinches (usually with a grin, but still...it hurts!), and drops and flops with her bottom in the air (or starts coughing) when she doesn't get her way. She likes to "hide" from me, push the buttons on all remote controls or small appliances within reach, and "sort" clean laundry. She thinks it is incredibly fun to shred toilet paper and even more fun to watch mommy clean it up. She's a little bit demanding, full of drama and into absolutely everything. And just now, Sara (who was supposed to be watching Bridget while I write this) came around the corner and said, "I just can't watch her any more! She's hurting me!" So there's proof: she is not always happy and loving.

With that said, she is generally a very sweet little girl. (She is also two. For sure.) We (parents of children with Down syndrome) tend to get frustrated, though, with the suggestion that all people with Ds are (fill in the blank). Stereotypes of any kind are hurtful in their generalization--in failing to see the person as an individual. But is being happy and/or loving such a bad thing? People with Ds are often less inhibited with their affection than others. Not always, but often. And that's part of what makes people with Down syndrome like magnets-- others are drawn to them. Who doesn't want to feel wanted?

On the way home this afternoon, Chris and I were talking about our youngest daughter's behavior today, and how other people reacted to her. (She hasn't always gone so easily to others, but has started to do it a lot recently. She does watch to make sure mom or dad is close by, and she points us out to the person holding her.) People were genuinely happy to hold Bridget this afternoon and really seemed to enjoy her social confidence and affection. I think she might have stolen a few hearts. She definitely made people smile.

We were talking about the stereotype ("they"--people with Ds--are always so loving and happy). "Well, there are worse things to be. That's for sure," Chris said. He said "being happy" (finding contentment and a sense of peace in Life) is one of his greatest wishes for all of his kids, now and in the future. We've often talked about how it doesn't really matter to us what they do, but how our hope is that they each stay healthy, and happy, and contribute in some positive way to the world.

Some people spend their whole life trying to find happiness. If this comes naturally, even easily, to Bridget, then all the better. There are sure to be other things that take more work for her. Whether it is somehow linked to the extra chromosome or not, this one thing--the innate understanding of how to be happy and make others happy--it is a gift.

Miss Congeniality

Today Bridget did nothing to dispel the stereotypes that people with Down syndrome are extra loving and always happy.

We went to Emmy's "First Grade Class Songs" at the elementary school this afternoon, and Bridget reached out to every person who approached us. Literally. Even if they were not coming to talk to us, but happened to be walking or sitting nearby, our little Miss Congeniality reached out with both arms and hopped into their arms. Men, women, children...she didn't discriminate. Anyone who appeared, in any way, willing to hold her got the chance. And it didn't stop there. She hugged and patted, kissed, blew kisses, played peekaboo (in a very coy way, always leaving a little room between her fingers to make sure the person was still watching).

When we were trying to leave, I put Bridget down so she could walk out. I turned around to see her sitting happily in a lady's lap (and I had never seen the woman before...thank goodness she was so willing to indulge my child). When I reached out to Bridget and told her it was time for us to go home, she patted the woman's leg, looked me squarely in the eye and said, "No". She was the life of the party. I am imagining next fall when she walks onto the school grounds again for her first year of preschool. All I can say is, they have no idea what they're in for :).

You'd never know it from the start of this post, but Miss Congeniality has been a bit of a rascal recently. I have been seriously considering getting out my markers and posterboard to make a "TWO-YEAR-OLD FOR SALE" yard sign. She pinches (usually with a grin, but still...it hurts!), and drops and flops with her bottom in the air (or starts coughing) when she doesn't get her way. She likes to "hide" from me, push the buttons on all remote controls or small appliances within reach, and "sort" clean laundry. She thinks it is incredibly fun to shred toilet paper and even more fun to watch mommy clean it up. She's a little bit demanding, full of drama and into absolutely everything. And just now, Sara (who was supposed to be watching Bridget while I write this) came around the corner and said, "I just can't watch her any more! She's hurting me!" So there's proof: she is not always happy and loving.

With that said, she is generally a very sweet little girl. (She is also two. For sure.) We (parents of children with Down syndrome) tend to get frustrated, though, with the suggestion that all people with Ds are (fill in the blank). Stereotypes of any kind are hurtful in their generalization--in failing to see the person as an individual. But is being happy and/or loving such a bad thing? People with Ds are often less inhibited with their affection than typical people. Not always, but often. And that's part of what makes people with Down syndrome like magnets-- others are drawn to them. Who doesn't want to feel wanted?

On the way home this afternoon, Chris and I were talking about our youngest daughter's behavior today, and how other people reacted to her. (She hasn't always gone so easily to others, but has started to do it a lot recently. She does watch to make sure mom or dad is close by, and she points us out to the person holding her.) People were genuinely happy to hold Bridget this afternoon and really seemed to enjoy her social confidence and affection. I think she might have stolen a few hearts. She definitely made people smile.

We were talking about the stereotype ("they"--people with Ds--are always so loving and happy). "Well, there are worse things to be. That's for sure," Chris said. He said "being happy" (finding contentment and a sense of peace in Life) is one of his greatest wishes for all of his kids, now and in the future. We've often talked about how it doesn't really matter to us what they do, but how our hope is that they each stay healthy, and happy, and contribute in some positive way to the world.

Some people spend their whole life trying to find happiness. If this comes naturally, even easily, to Bridget, then all the better. There are sure to be other things that take more work for her. Whether it is somehow linked to the extra chromosome or not, this one thing--the innate understanding of how to be happy and make others happy--it is a gift.

Sunday, May 24, 2009

Bridget's Website--Feedback Requested

Has anyone here seen or spent time on Bridget's website? I initially thought a website would be the best way to share our story, but soon realized that it was extremely difficult to update (every time I make a change, other things move around, fonts change, etc.). The blog is the opposite, but is harder to navigate for basic information. I was thinking of closing down the website and transferring its contents here. Does anyone have comments or suggestions?

Thanks everyone for the comments on this. I had a feeling that the website is valuable as is (without being updated). I am guessing that the website and blog appeal to people for different reasons. When I started the blog, I decided to add a link here and stop updating the website. But, it seems like lots of people find one or the other in searching for information on Down syndrome. It also seems like lots of people find the blog or the website, but not both. A larger button is a great idea (I am still trying to figure out how to make a "real" button, but I have created a new, larger link to the website on the sidebar to the right for now). Any other thoughts?

Bridget's Website--Feedback Requested

Has anyone here seen or spent time on Bridget's website? I initially thought a website would be the best way to share our story, but soon realized that it was extremely difficult to update (every time I make a change, other things move around, fonts change, etc.). The blog is the opposite, but is harder to navigate for basic information. I was thinking of closing down the website and transferring its contents here. Does anyone have comments or suggestions?

Thanks everyone for the comments on this. I had a feeling that the website is valuable as is (without being updated). I am guessing that the website and blog appeal to people for different reasons. When I started the blog, I decided to add a link here and stop updating the website. But, it seems like lots of people find one or the other in searching for information on Down syndrome. It also seems like lots of people find the blog or the website, but not both. A larger button is a great idea (I am still trying to figure out how to make a "real" button, but I have created a new, larger link to the website on the sidebar to the right for now). Any other thoughts?

Wednesday, May 20, 2009

Puzzle Piece Epiphany

Bridget has a wooden puzzle with six ballerina bears. The base of the puzzle is upstairs, but the bears--of course--are spread randomly throughout our first floor. Last night, Bridget was sitting on the bottom step of the stairway by our kitchen. As I passed by, she jumped up, yelled "KICK!" and handed me this bear.
She's not just a cutie pie...she is one sharp cookie.

Puzzle Piece Epiphany

Bridget has a wooden puzzle with six ballerina bears. The base of the puzzle is upstairs, but the bears--of course--are spread randomly throughout our first floor. Last night, Bridget was sitting on the bottom step of the stairway by our kitchen. As I passed by, she jumped up, yelled "KICK!" and handed me this bear.
She's not just a cutie pie...she is one sharp cookie.

Tuesday, May 19, 2009

My most recent Google search...

"Do you need to call poison control when your toddler dips a play skillet into the toilet and takes a big swig?"

The toilet was flushed. But ick. And where was her mommy during all of this? Close by, but apparently not close enough. Or quick enough.

Heaven help me.

My most recent Google search...

"Do you need to call poison control when your toddler dips a play skillet into the toilet and takes a big swig?"

The toilet was flushed. But ick. And where was her mommy during all of this? Close by, but apparently not close enough. Or quick enough.

Heaven help me.

Sunday, May 17, 2009

Light and Shadow

I can't even begin to describe how much I love this time of the year. The days are brighter, warmer, longer. Maybe it's my imagination, but there seem to be more moments to linger, to breathe in the world around.

School and school-year activities are winding down, so we're busy with wrap-up events, but it has been enjoyable. I am taking every chance I get to focus on the things I love, on the things that fill me back up. I have had my camera at close reach and I'm planning to share more of the pictures I've taken over the past couple of weeks.

We've had amazing light recently, especially in the early morning and also with soft sunlight streaming into our family room in the evening. Last night was particularly stunning. Bridget discovered her shadow and was captivated. I grabbed my camera and started shooting. My sweet, adorable little girl...the pictures (more here soon) bring tears to my eyes. I feel so lucky to be her mom.



Bridget & shadow
with baby doll

Light and Shadow

I can't even begin to describe how much I love this time of the year. The days are brighter, warmer, longer. Maybe it's my imagination, but there seem to be more moments to linger, to breathe in the world around.

School and school-year activities are winding down, so we're busy with wrap-up events, but it has been enjoyable. I am taking every chance I get to focus on the things I love, on the things that fill me back up. I have had my camera at close reach and I'm planning to share more of the pictures I've taken over the past couple of weeks.

We've had amazing light recently, especially in the early morning and also with soft sunlight streaming into our family room in the evening. Last night was particularly stunning. Bridget discovered her shadow and was captivated. I grabbed my camera and started shooting. My sweet, adorable little girl...the pictures (more here soon) bring tears to my eyes. I feel so lucky to be her mom.



Bridget & shadow
with baby doll

Monday, May 11, 2009

Ballerina, Interrupted

Tonight we made a few minor adjustments to Sara's costumes for her dance recital. Bridget, who has recently been spotted sporting outfit additions including everything from bras to bathing suits, appeared from behind the family room couch wearing the tutu pictured here. She tripped as she came around the corner and ended up sprawled out on her tummy with her feet out on either side (graceful!). Along with the tutu, Bridget was also wearing a second-hand shirt with iron-on letters that spell out T-R-O-U-B-L-E (the shirt is not part of Sara's costume, but does accurately describe her youngest sister!).

Please note: No ballerinas were harmed in the taking of these photos.




Ballerina, Interrupted

Tonight we made a few minor adjustments to Sara's costumes for her dance recital. Bridget, who has recently been spotted sporting outfit additions including everything from bras to bathing suits, appeared from behind the family room couch wearing the tutu pictured here. She tripped as she came around the corner and ended up sprawled out on her tummy with her feet out on either side (graceful!). Along with the tutu, Bridget was also wearing a second-hand shirt with iron-on letters that spell out T-R-O-U-B-L-E (the shirt is not part of Sara's costume, but does accurately describe her youngest sister!).

Please note: No ballerinas were harmed in the taking of these photos.